Useful links


a world where people with a learning disability are valued equally, listened to and included. Our challenge, alongside people with a learning disability and their families, is to make this world a reality.

Down's Syndrome Association
Find out more about Down's Syndrome here. A useful resource for all types of questions.

Future of Down’s is a website run by parents of children with Down’s syndrome for anyone who needs them!

Sibs is the only UK charity representing the needs of siblings of disabled people. Siblings have a lifelong need for information, they often experience social and emotional isolation, and have to cope with difficult situations.

Parent Blogs

A Different View
A wonderful blog about Rosie's friend Ella. Amy's blog played a big part in motivating me to finally get my thoughts and feelings written down. Beautiful photography of Ella too.

Written by Paul, Emily's Dad. Emily is 20 years old and has Down's syndrome – something Paul knew nothing about until Emily was born. This is a fantastic read for parents of younger children (like myself) who'd like a peek into the future to read about the endless possibilities for our wonderful children. Emily is a star and real character by the sounds of it!

Gently changing perceptions of Down's Syndrome from within hearts. An inspiring blog by Hayley about life with T21. Beautifully written, this particular post being one of my favourites:

Friends of The Future's Rosie

Faces Places
Ric is a truly wonderful friend and responsible for some of our most treasured Rosie pics. He is a product/ furniture designer and photographer. FacesPlaces is Ric's alter ego which keeps things fun and creative when the day to day become a little too day to day. "This website will hopefully give an idea of what I do with a camera and see through the lens".

Nicola Wardle Photography
Wonderfully original, 'Bump to baby' and Family photography. Nicola loves to document images that capture personality, relationships and emotion. You can also follow Nicola's Blog page here, its well worth a look


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  2. As a sibling of a Down Syndrome person, I suggest you might look into adding the sibnet network connection for links... recently I found them. I am 65 yrs old and my sister is passed on. As an organization, the sibnet organization has developed a sibling network for different age groups of siblings of developmentally disabled persons. Remember the siblings as well. We have mixed feelings, that sometimes are held in for years as we feel guilt about negative feelings and pride about positive feelings regarding our siblings and their lives. Thank you for sharing your story.

  3. Charlotte Whistlecroft7 November 2016 at 03:51

    Hi Tom,
    I’m a writer for GoodtoKnow and think your blog is brilliant! I’m writing an article about what it’s like to have a child with Downs Syndrome and it would be great to hear your thoughts on it. I’m hoping the piece will help raise awareness and it would be great to have you involved! If you’re interested or have any questions about it, please just drop me an email at